Actor Karthi, the Kollywood heartthrob is now treading the path of a social cause. He has joined hands with a patient group, suffering from a category of rare genetic diseases called ‘Lysosomal Storage Disorders’ (LSDs). Karthi, recently participated in a press meet to announce his association as the Ambassador for the cause.
LSDs are disabling and life threatening. There are about 45 different kinds of LSDs caused due to lack or malfunctioning of a certain enzyme in the body. Explains Dr Sujatha Jagadeesh, Consultant Clinical Geneticist, Fetal Care Research Foundation “Only six types of LSDs have a treatment option. While LSDs as a group have an incidence of 1 in 5000, the treatable LSDs are extremely rare and have an incidence ranging from 1 in 40000 to 1 in 120000. These are genetic disorders and affect children as well as adults. LSDs are disabling and life threatening. However, if treatment is provided in time, the patients can lead a normal life. I come across about 3 new cases of LSDs like Pompe, Gaucher, Fabry and more every week.”
Karthi, says, “I was distressed the first time I saw these kids suffering so much so early in their lives. It made me conscious about our and the society’s responsibilities towards them. We need proper awareness, diagnostic facilities and funds to support the treatments. I’ll be glad if my involvement could lead to a positive future for these kids.”
The excitement in the children to meet their role model and the hope on their parents’ faces to see the support from Karthi was visible. Added Mr Prasanna Kumar Shirol, President, LSDSS and also father to a 12 year old patient “We set up this society early last year to together support the patients and their families. We are delighted to have Karthi with us and I m certain that this association will be a remarkable step towards our objective of making the lives of these little kids better.”